redrocks99' 
Member since Jan 20, 2009


RegionName: Out-of-Town OtherArea: central mn, tickville, usa

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Re: “Long Story Short

Chronic lymes exist, but not to the mayo clinic, or the rest of the corrupt,mainstream medical industry

Posted by redrocks99' on 01/22/2009 at 2:39 PM

Re: “The tick and the time bomb

Lymes disease is the worst disease to get caught up in!!! Lymes Disease, how depressing. I moved to Colorado in 1998, living the dream. I got my general classes under my belt, and discovered skiing was the only thing that mattered to me. The year 2000 was my best and worst year at the same time. I studied Spanish 3 and lived with a family in Ecuador. That fall, I woke up one morning, in Boulder, Colorado, with my entire body itching and noticed a small bite that itched a lot, thought nothing of lymes. I moved home in 2002, I thought I was dying, 1st panic attack, in 2002 brought me to the emergency room. I have had about 15 standard lymes test, all negative, wasted $60,000-$80,000 on getting misdiagnosed, paying for expensive pills, and all the Drs knew I didnt have insurance for pills, that wasnt important to them, not one Dr would listen, and Im guessing I got shuffled through at least 15 different Drs, to find out nothing was wrong, thats what they thought. They insisted I was crazy, they all felt comfortable prescribing expensive pills, seroquel, mood stabilizers, extremely expensive, and unnecessary testing; mris, emg, all expensive, painful, and a waste of time, just to name a few. However, odd enough, not one Dr felt comfortable signing for the test from California. I was fortunate to have my Physicians Assistant to agree to draw blood and send it to a lab that specializes in lymes and tick borne illnesses. I had a call from my PA, saying Minnesota has a law that requires an MD to sign for it, why? A PA is able to prescribe oxycontin, mood stabilizers, muscle relaxers, xanax, whatever they want, but not a blood test that might save my life. Four Drs later, 7 days late, I found an MD, my acupuncturist is qualified, therefore he signed it in a heartbeat and it came back positive from Palo Alto, CA. I was clinically diagnosed with AIDS, from an IDS (infectious disease specialist) and he refused to sign for the test from California, which could save my life. I also was misdiagnosed with having fibromyalgia. Im so sick I even tested positive for the CDC requirements, which is impossible to do. I was lucky to find Tracy, the president of www.lymefighters.org Minnesota's Lyme Fighter Advocacy, and was informed I had lymes, and told me to get the test from Palo Alto. I talked with my old Drs nurse, she agreed to meet me in the lobby, so I could drop off my results, that I have lymes disease, and I dont have gout, I got surrounded by 3 security guards, and escorted me out. The Dr that clinically diagnosed me with gout, prescribed Allpuronol, and Indomethacin, which have an adverse affect on the immune system, making it harder for my body to fight off lymes disease. Which is why its set me back further on my battle on lymes. Brought me to an even more chronic state to allowing the bacteria to take over my body and debilitated me. My cognitive impairment makes it hard to process and understand facts, information, and reading. I also get lost, cant remember what Im doing, constantly loose everything, and my memory is simply gone. I am currently unable to take care of myself. For example, I am unable to put socks and shoes on, cant bend over, cant twist my spine. I am unable to do dishes, laundry, floss my teeth, cant pour my own juice because I have lost all strength in my hands, and my wrists, thumbs and hands are too weak. I am unable to do my own grocery shopping; I cant even lift a squash to put into my car. I am unable to cut my squash, along with a lot of other fruits and vegetables, which is necessary for better health, making meals, doing anything that requires bending over, or leaning forward, is impossible. I have lost all strength and mobility in my thumbs, which has made it impossible to open jars, juices, bottled water and I am unable to use a scissor, pliers; and writing is very challenging and painful, grasping glasses is extremely difficult and very painful. I also am unable to physically get out of bath tubs, low couches, chairs due to lack of strength and severe weakness in my arms, shoulders, wrists, and hands. Getting out of bed is painful and difficult, as well as, steps, standing, typing on the computer, and taking showers. It took me 9yrs to find an LLMD (Lyme Literate MD). I used to be able to ski 14 days in a row in Colorado, now I struggle to make it through another day, whether that's from walking up and down stairs, getting out of bed, accepting I got ignored/misdiagnosed, or taking a shower. I am currently 29, and unable to take care of myself. While I watch friends live life to the fullest, my life revolves around people helping me make it another day, I'm helpless, and thats what Chronic Lymes disease is. lymes disease is the biggest epedemic in the world, and drs dont care about the patient, they listen to the pharmacuetical reps, who pay them, instead of the sick patient the medical system, along with our gov't, is so corrupt, you would think we're (lyme victims) living in the 3rd world, like Columbia, but i guess were in America

4 likes, 0 dislikes
Posted by redrocks99' on 01/20/2009 at 5:29 AM

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