sfrobin 
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Re: “The tick and the time bomb

Finishing up - I don't think it is even economically a good idea to ignore what's going on - it's expnsive to home-school kids, it's expensive to lose everyone's participation in life, it's expensive for people not to be able to work and have to go on disability. And some of us, like me, just need some oral meds. Compare the low cost of my current oral antibiotics to the cost of probably one-half million bucks spent on me for all the wrong medical care over twenty-five years time. No contest. Well, it is time for the medical stand-down to end. People are reading Pam's book now, "Cure Unknown" about the history and politics of these tick-borne diseases. People are going to be seeing the movie "Under Our Skin" when it comes out in general theatres this spring. When people realize what's happening, they are going to asking for their right to be recognized and treated for these medical diseases. And we are all going to be watching the process of the revision of the IDSA guidelines, for they have been standing in our way. Shame on a medical profession that is doing harm to so many. I think any doctor who refuses to recognize, adequately test for and treat Lyme disease and coinfections should have their license revoked for refusing to recognize what is essentially a pandemic sweeping our world. As a society, we have to do better! And that needs to include a universal public education campaign about Lyme and coinfections, and the tranmission routes of ticks/insects/human transmission so that all of us, including the people featured in this article, don't have to be unaware anymore that this is happening in our world. We need to know so we can change our habits to protect ourselves, our pets, and the environment while we figure out how to stop these plagues. As a society, we can do better and we must do better. I believe our future survival rests on doing the right thing - not continuing the self-benefitting from profits to be made off of everyone being sick, but an honesty that needs to return to medical care. It's going to take telling the truth and standing up to the injustice. Who's ready? We patients certainly are!

3 likes, 0 dislikes
Posted by sfrobin on 01/16/2009 at 7:41 AM

Re: “The tick and the time bomb

Kudos to you for this article and to all those who told their story here. I am proud to follow after Bettyg, a tireless advocate for Lyme awareness. I am especially saddened by Leslie's recent passing. If she, and all of us had known earlier, we might have been able to avoid this painful fate. I was bit on my foot in 1981 by a tick, had it removed by a tick, had it removed by a health clinic, had no symptoms at all, including no rash. Three months later, symptoms began with sore shoulder and neck muscles. I thought it due to my work, and went to repetitive stress injury support groups for twenty years. For 25 years, I went to 300 medical professionals in the San Francisco Bay Area - doctors, physical therapists, chiropractors, body workers. No one recognized the multi-systemic symptoms Of Lyme disease. They would do their tests, which would come back normal. They would do their therapies, and still I remained in pain. Many times I was asked to see a psychologist. I did have psychological counseling during this time, but counseling cannot fix an unknown bacterial infection! Everyone I saw, and myself, were confused. How could this be happening to me, who had grown up basically healthy? Finally I was on the internet, searching. I asked in a health chat site and a nurse in Virginia asked me what my symptoms were, then had I ever been bitten by a tick. Yes, in 1981, on my foot. She solved a twenty-five year mystery. I bloodtested positive, went on antiiotics, and improved some. I am still dealing with challenging symptoms due to having this infection for 27 years, unbeknownst to me. I can't believe that we are all being held hostage by a medical community that basically refuses to look at Lyme disease and coinfectons, which are spreading everywhere in the country and the world. It is not safe to not look at what's happening - children are being born with it. It's costing children their lives. Many cannot go to school anymore and have to be home-schooled. It's costing young people their lives. It's costing workers their jobs; many have to go on disability. And if it hits a senior, they have even less physical resources to handle this. I think I know a number of seniors who have died from unrecognized tick-borne disease.

4 likes, 0 dislikes
Posted by sfrobin on 01/16/2009 at 7:19 AM

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